European Patient Organisations

European Patient Organisations2019-10-31T22:12:48+01:00
AFNP

AFNP

The French reference organisation for patients with immune-mediated peripheral neuropathies
www.neuropathies-peripheriques.org
contact@neuropathies-peripheriques.org
Facebook @peripheral.neuropathies.fr

Who we are

AFNP is a non-profit organisation for patients living with a dysimmune peripheral neuropathy. We aim to represent patients
diagnosed with CIDP, GBS, MFS, MMN, LSS, MGUS and other dysimmune peripheral neuropathy without specific patient representation.

Our mission

Improving patients’ overall quality of life and giving support to their families and care-givers Ensuring equality, uniformity and equity in access to diagnosis and treatments all over Italy Raising awareness and advocacy about dysimmune neuropathies and health policy issues Supporting studies and trials in the field of
immune-mediated peripheral neuropathies Networking with patients organizations, health institutions, medical societies and researchers both nationally and internationally

Italie

CIDP ITALIA ONLUS

The Italian reference organization for patients with immune-mediated peripheral neuropathies
www.cidp.it
cidpitaliaonlus@gmail.com
Facebook @cidpitaliaonlus

Who we are

CIDP Italia onlus is the non-profit Italian reference organization for patients with a dysimmune peripheral neuropathy. We represent patients
diagnosed with CIDP, Guillain-Barré syndrome, MMN and Lewis-Sumner syndrome, their families and caregivers.

Our mission

Improving patients’ overall quality of life and giving support to their families and care-givers Ensuring equality, uniformity and equity in access to diagnosis and treatments all over Italy Raising awareness and advocacy about dysimmune neuropathies and health policy issues Supporting studies and trials in the field of
immune-mediated peripheral neuropathies Networking with patients organizations, health institutions, medical societies and researchers both nationally and internationally

ARBNP: Asociatia Romana pentru Boli Neurologice Periferice

The Romanian reference organization for patients with immune-mediated peripheral neuropathies

Who we are

ARBNP is the non-profit Romanian reference organization for patients with a dysimmune peripheral neuropathy.

Our mission

Improving patients’ overall quality of life and giving support to their families and care-givers Ensuring equality, uniformity and equity in access to diagnosis and treatments all over Italy Raising awareness and advocacy about dysimmune neuropathies and health policy issues Supporting studies and trials in the field of
immune-mediated peripheral neuropathies Networking with patients organizations, health institutions, medical societies and researchers both nationally and internationally