Non-profit Alliance, EURORDIS-Rare Diseases Europe brings together 826 associations of patients with rare disease. Representing 70 countries, these associations work together to improve the lives of 30 million people living with a rare disease in Europe.

By connecting patients, families and patient groups, bringing all stakeholders together and mobilizing the rare disease community, EURORDIS strengthens the voice of patients and contributes to the development of research and public health policies and patient services. .