Dysimmune Inflammatory Neuropathies, CIDP MMN GBS LSS MFS
By connecting European institutions and patients organizations, EPODIN aim to strengthen patient’s voice, shape research, policies and services for patients and their families.
By connecting European institutions and patients organizations, EPODIN aim to strengthen patient’s voice, shape research, policies and services for patients and their families.
Epodin works to help the improvement of health standards,
social & medical policies both at national and international levels.
We collaborate with European institutions, including European Reference Networks and medical societies, to achieve the highest standards of diagnosis, treatment and care for rare immune-mediated peripheral neuropathies for patients in each European country.
Epodin is happy to share ressources and best practices to help each European country structure its patients community.
We make our best to stay close to patient communities in countries all over the world where patients organizations don’t exist.
Epodin created and promote the DIN Day.
Every 11th June, we invite to celebrate the strengh
of people living with dysimmune and inflammatory neuropathies (DIN) and help raise awareness on rare immune-mediated neuropathies.
We believe awareness is the key to improve diagnosis and bend policies towards a better therapeutic access.